Friday, September 11, 2009

Samantha's Surgery

Samantha got into surgery later than expected today...the surgeon has decided that he cannot do the entire focilization today and the stenosis of the aortic valve in one surgery....he believes she won't make it through one surgery to do everything...so we are going to be doing a long drawn out process of multiple surgeries every 2 to 3 months until the focilization is done and then we will do the stenois.....Today they are going to do just the right side of her heart....the surgeon told us this morning that the pulmonary colleterals are extremely small and very narrow and although he is confident that this phase of the surgery will go well, he is worried that they won't grow or they will get more narrowed.....so my worry is okay if they get more narrow and don't grow, then what? If they started the unifocilization and they can't finish it...where does that leave Samantha? I can't believe that she has to do this 3 more times in the next 12 months....

8 comments:

  1. Hi Stacy! Take a deep breath and take it one step at a time. If the surgeon feels comfortable just doing one part of the unifocalization for now, then we'll have faith that that is what's best for Samantha.

    I've been sending up prayers all day, and will continue to do so. Hang in there!! Sending you all my love today..xo
    Megan

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  2. HI Stacy...
    Samantha's heart is a little different than Isaac's...but, they had to do his in 2 steps (almost three steps). It stinks...but, we'll pray that she recovers super fast from this surgery and that she'd strong and ready when it's time for the next surgery.
    I do know of another kiddo that had to do it in steps like that (each lung), next lung...I can't even remember how many steps she's had. . But, she's a fighter. Let me know if you'd like her info.

    Praying for you guys,
    Kathy

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  3. Hi Stacy,

    Megan told me about your sweet Samantha. My daughter Ramona has had many heart surgeries and is also not eligible to have everything done at once. She has had some type of heart procedure every 4-6 months since birth. She's almost three now. Despite all of that she is a happy and smart little girl. Hang in there and try to go one step at a time. None of us know what the future holds for these special little hearts, I'll be praying for health and healing for Samantha.

    Jane, Ramona's mom
    www.RamonaMae.com

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  4. Hi Stacy,

    I heard about Samantha from Megan. Just wanted to let you know that we're thinking of you and your baby. My son has been through 2 open heart surgeries, and awaiting one more; he just turned 2. I hope all went well. Don't forget to breathe and have faith.

    Jennifer
    Nathan and Justin's mom
    www.fourtran.com

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  5. Hi Stacy,

    I heard about Samantha from Megan. I'll be thinking of you and your little girl.

    Wishing Sam a speedy recovery!

    Sending our love and blessings your way!

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  6. Thank you everyone for your support. I am having problems with facebook and cannot access it. Samantha had a horrible night...she keeps stopping breathing...the surgeon told us the pulmonary colleterals were so small and that he doesn't have much hope for going forward with the rest of the unifocilization....unless the colleterals grow,but he appeared to me that he didn't have much hope in that. The only other option is a heart, double lung and liver transplant, which he says that he doesn't believe would work for Samantha....so in essence, all my hope is shattered....I keep asking why we are putting her through this hell...to see her lying there in so much pain...for what? Because we can't let her go??? It's not fair to her...I wouldn't wish this hell on anyone....But, yet she is a fighter and I don't want her to think we gave up on her....I pray for a miracle, but I don't think God hears me.....

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  7. Oh... wow...
    okay... well, I second what everyone says...

    I am keeping you all in my thoughts and prayers...
    what a scary thing you are going thru...
    I wish there were something I could say or do to help...

    Please know we care and we are all here for you..

    Matthew is an absolute miracle... miracles do happen... and I didn't think God was listening to me either...

    this is all in HIS hands... we have to trust the He is in control...

    I had to keep telling myself that Matthew was on loan to me from God.. and I was there to care for him while he was on earth...

    Love... and hugs....

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  8. I am sorry you guys have had a rough road. My prayers will be with you and Samantha.

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