Long Overdue Update

Sorry for the delay in updating on Samantha....my husband had to leave, so I have been here alone with her and I don't leave her, especially since we had two very bad experiences in the past 3 days...so I don't leave her alone at all. Samantha is doing better....her platelet level is back up to 120,000 - not near the 256,000 mark as she was before, but much better...they still don't know why this happened....On Monday they are going to put in her g tube....between the incision on her side from the heart surgery, the stitches from the chest tube, the stitches on her wrist and now the stomache surgery, I don't even know how the heck I am going to be able to pick her up without hurting her, as she is so small, there are no places on her small body to pick her up without hitting her incisions. I spoke with one of her surgeon's team members and it was expressed that they have talked about Samantha repeatedly in the past week since her surgery and the overall impression that my husband and I are getting from them is that they don't hold much hope that her pulmonary collaterals will grow....I am having a really hard time with this and can't accept that there may be nothing noone can do....I feel really lost, sad, angry, etc... Everyone keeps saying hold on to my faith, my prayers, etc...but that is really hard to do when you know in your heart that you may lose your daughter.... I still can't get on facebook, so if someone could please let Dan and Kerry know that I am thinking of them and Ruby, I would truly appreciate it. I will try and update again by Tuesday....Hope everyone has a nice weekend.