Monday, September 14, 2009

Samantha had the best night so far....she is not eating very well, but it was the best night for her sleepwise. We are waiting to find out why she has hardly any voice, when the other day she had a voice....we are waiting to find out why she is congested and coughing (it sounds so horrible) and we are still waiting on the platelets and why they are soo low. So we wait and wait.....she is getting platelet transfusions and she seems to do good after them, but then after awhile the level goes down again...very frustrating......The brain and chest scan show no bleeding, which is good, but now they are suggesting what they refer to as "old people's disease", which is called HIT or HIP, which I have to research when I have time, but apprently what it is is that you develop life threatening blood clots that could kill her or cause her to loose limbs.....Why they think she would have the "old people's disease" is beyond my comprehension, however everything that happens to Samantha is beyond me! So now we wait for those results and if she has it, then we need to be trained on how to deal with that....Every time we go to the doctor's/hospital, they tell us she has something else.....it is so disheartening.....

4 comments:

  1. I'm happy to hear that Samantha had a good night of rest!! I'm so so sorry to hear about the other things that keep coming up. We can relate to the constant new discoveries on some level. It seems like we are always finding out about new things that are going on with Elijah's body. I guess there's not much we can do besides roll with it and take care of our little ones the best we can. The waiting and wondering has always been one of the most difficult parts of this journey for me. It is so hard to be patient when it comes to your child's health.

    Anyway, We continue to pray hard for you guys!!! Keep hanging in there and thank you so much for the updates. xo

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  2. good to here pepper i still pray every night for you and your familly best wishes to u all.. DK

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  3. I hope all is well!! Thinking about you guys..xo

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  4. hi - we're friends of the kings in vegas. we'll keep little samantha in our prayers will ask for her strength and your strength during this time! lots of love to your family from vegas.... the mannings

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