Friday, September 25, 2009

Samantha Update

Another longggg week is coming to an end at CHOP...Samantha had her g tube surgery on Monday and although the surgery went fine, she is having a lot of trouble with the g tube...it is producing a tremendous amount of gas and reflux everytime we use it.....at one point,she was in so much pain, that my angel actually pulled her hair out! We are trying to fine tune the feeding and the gas/reflux issue.....She is also having more than usual problems with her weight gain...down 6 ounces......In regards to her heart, she seems to be recovering fine from the surgery and in a couple of weeks she will have a catherization done to see if the pulmonary colleterals have grown..if not, then they don't see any reason to continue the surgeries and they state there is nothing to be done. I had a lot of doubts about continuing all of this after seeing everything that Samantha has gone through, the hurt, pain, crying...but Samantha is not willing to give up, so I won't either...if they say that is it, they can't help her, then I move on to my last hope...Dr. Hanley..... Right now, my angel is sleeping and my husband (who just came back after being gone all week) is with her, so I am going to go enjoy a nice long hot shower..... Thank you again everyone for everything....we are truly blessed with amazing friends and family...thank you.
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3 comments:

  1. The PortasSeptember 25, 2009 at 12:53 PM

    I'm so glad to see an update! I think of you all the time and hope everything is going well for your little girl. And of course, for you, as well.

    I'm sorry to hear about the g-tube difficulties. Hopefully it's just a matter of tweaking and finding exactly what works best for her little body.

    Regarding her heart, try to take it one step at a time and try not to look ahead too far. That will just drive you crazy! Trust the docs caring for her and trust your mama instincts and give her the love she needs and everything will fall into place.

    I hope you are able to get rested and refreshed a bit now that your husband is there. Elijah and I have been saying a special prayer for Samantha every night and we will continue to do so! Hang in there, Mama! xo

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  2. UnknownSeptember 26, 2009 at 9:15 PM

    so good to hear she is recovering fine from the surgery. since your husband hasnt been in vent with us i didnt had chance to get some updates of whats going on. keep going! althoug there's pain now. the surgery work'd and now there is another step that has been walked
    keep the hope

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  3. Little Baby ManningSeptember 28, 2009 at 5:02 PM

    just checking in on you. glad to hear you haven't given up hope - we won't either. i'm so sorry your sweet little girl has to go through this. and you too. we can only pray that you, your family and her will find some sort of peace through this and comfort. if you do end up with dr. hanley, we LOVE him. we couldn't trust anyone more with our son. we'll check back.... lots of love to your family. the mannings

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