Doctor Visit...

Went to CHOP yesterday...the cardiac appointment was not what we expected...Samantha's oxygen stats were low 60's when crying and high 60's when not crying....this is much worse than before the surgery....but we are not going to give up hope...Bobby and I feel that they were low because she had just got done crying and was still upset, however Sam's cardiologist was not as optimistic as we were....she will be getting a cath done next month to check the sugery they did, it may be that her pulmonary colleterals they tied to the shunt are clogged and need to be balloned...we just don't know, and will have to wait to see. Another month of waiting...I feel that is all we do is wait and wait and wait for one piece of good news...it is so fustrating and exhausting... On the flip side, her liver appears to be doing awesome and is amazing her Allageles (I am so tired, I don't even think I spelt that right) doctors....they are taking her off her formula and going to try this special formula for kids who have issues with gaining weight/don't like to eat....it has more calories, but unfortunately, it is just as expensive as the formula she was on.....but hopefully the more calories will help her gain weight. She only gained several ounces...she is not 10 pounds 14 ounces and according to the doctors she should be close to 20 pounds for her age.... On the bright side, Samantha said another new word "up". She is also on target neurologically, which is awesome. Will post new pics soon....