2nd Surgery Delayed

Samantha's second heart surgery that was suppose to be done in January has now been pushed back to March and she will have to have another catherization done prior to that surgery to make sure she is getting proficient blood to the lower part of the lung, to make sure that the stent that was placed on 12/4 is working and that the lower colleteral that was dialated did not collapse again..... I have been preparing myself mentally for this second surgery as I know how hard a time she had with the first one and now we have to wait another two months...ugh :-(

On a MUCH brighter note...Samantha turned one on 12/19. She LOVED her cake!!! We had sooo much to celebrate that day....Samantha is beautiful, funny, loves music, loves to make faces, dances to spongebob square pants and all music, loves to play with Frankie....I truly don't know what I would do without her and my son....when I start to feel drained, like I can't fight anymore and am too tired...I just look at her and know that she hasn't given up, that she is still fighting and all my strength comes back.....she is definitely an angel!

Result of 12/4 Cath

Samantha had her follow-up catherization done today and even after all of the negative comments and thoughts from the doctors telling us that they didn't have high hopes that the first part of the unifocilization would work, Samantha PROVED THEM WRONG!!!! To quote the doctor "he is absolutely amazed" at how well she is doing and how the first part of the unifocilization worked!!!! She did unfortunately have to be balloned (dialated) and she did have to have a stent put in and again, unfortunately, they think she may have a blood clot, which means more shots at home of levonx, but that is nothing compared to the news that we can now go ahead to the next part of the unifocilization...... We will have to, once again, after the second part of the unifocilization go through this again where we have to wait to see if it worked so we can have the third and final surgery or if she will need the 4 organ transplant.... But for now, all looks good and my angel has proven everyone wrong.....just when I almost gave up, she showed me how to have faith again. She is definitely an angel sent from god!!!!! Mommy and Daddy are definitely going to give her one awesome first birthday party and Daddy wants to invite all those doctors who told us she wouldn't live and to take her home to die so Samantha can throw cake at them :-)

Update.....

12 days to Samantha's cath and finding out if we can move forward with the next surgery or if she will need a heart, double lung and liver transplant....waiting is driving me nuts, but finding out is making me sick to my stomache....Samantha also lost weight...went from 11.15 to 11.10...even though it is only 5 ounces, it is a step back that we didn't need....2009 sucked, hopefully 2010 will be better......

Catherization delayed until 12/4

Sammi's catherization and ballon surgery was postponed until 12/4, as the little princess has bronchotis and they cannot do the procedure until she is at least 2 weeks off her antibodics and we are sure she is 100% well..... Now I am worried because her second H1N1 vaccine shot is on 11/30, only 4 days before the cath surgery and she got sick after the first H1N1 shot...ugh.... Samantha is now up to 11.12 pounds - !!!! She finally has chubby cheeks!!! It is awesome.... Here is a picture of my little angel from Halloween -

Follow-up Catherization

Sammi's follow-up catherization to check to see if the first part of the unifocilization worked is scheduled for November 11th...I am holding my breathe until then, as that is when we find out if the pulmonary colleterals that they tied together into the shunt have grown or not...her oxygen stats make me think that they have not, as they have gone pretty low since her surgery 9/11....I don't know what we will do or which direction to turn if the surgeon comes out and tells us they haven't grown.....I am really scared....really praying for that miracle that has yet to come....

Cardiologist Visit Update

And so goes the vicious cycle...we take a huge step forward with Samantha (her weight gain) to get slammed 10 feet back with her oxygen level...plummeted to 64 and is dropping.....now they are talking oxygen at home and for the rest of her life....I am so F*ing fed up and disgusted...praying for a miracle, but losing faith...

Yeah Sammi!!!

Sammi FINALLY weights in at 11.5 pounds...after 10 long months our little fighter finally broke the 11 pound barrier! YEAH!!!!!!!!!!!!!!!